This journey has been the longest road I have ever walked, usually I like to run through things get it over with but ummm ya this not so easy. After being really aggravated with being dictated to about having to see another doctor for some tests that make no sense, when my own doctor has cleared me I am almost not so pissed today.
So the story goes like this, I get a call from Maria telling me I need to see their OBGYN, mind you I have never met this doctor and have had my own OBGYN for 20 years and recently got a full battery of testing that was not fun to say the least, but cleared me of anything that would hinder this process. I turned over my records and reports to Lahey, but because there is no OBGYN on my "team" and no one to interpret or understand my reports from my OBGYN they felt that I should see one of their OBGYN's and they schedule the appointment with out consulting me about it!
O HELL NO, I have been poked,prodded, have had every test on the planet, major amounts of blood drawn, got a needle shoved in my chest, breast exam, and not to mention the other cavity probes and now they want me to go through an exam with some stranger to end up with the same results that I already supplied. So I pose the question, Why cant you just walked down the hall with my records and show an OBGYN on your staff so they can explain it to the "team" and not put me through this intrusive testing that you already have results from? The answer....alot of well blah blah....really no answer.
One thing I learned at the beginning of this process was that you need to ADVOCATE for yourself becuase if you don't you are allowing them to dictate the whole process. Afterall it is your body that they are turning you into a guinea pig. I cant help but feel that it is about billable insurance money. I spent yesterday on my soap box with my Dr. Kristen from Lahey and email Denise with more of my rant. I expressed that I will refuse an examination but will allow a consult with their OBGYN and if any examinations have to be done that it must be done by my doctor, ummm hello it's my VAGINA I get to chose who see's it don't I? Besides not like I will transmitting a chance of pregnancy or menstruation to my father via Liver...really people this is just ridiculous and is prolonging getting us to the date of transplantation surgery. So far every test I have taken at Lahey I am deemed fit to donate...but for the last week I have had acid reflux, a headache and I think I got about 6 nerves that are not shot yet, I am straight out bitched out at this process this week and on Monday will be calling my OBGYN and telling her what is going on and hopefully have her speak to someone on my "team". I have been a dutiful servant to this process I have accepted everything they have thrown at me but this has gone to far and it is a bit insulting. My OBGYN's care for 20 years has been more than adequate and just because she is from New Bedford does not make her less of a Doctor, I feel there is some ego tripping going on here too. Either way I own my Vjayjay and unless they can prove to me that there testing is better than what I have already endured that proved I was cancer free they need to step down and get us on the table to Deliva da Liva already....So I sit here taking deep breaths and sighing as I re-read some of the emails and think o WTF..I am gonna throw on my pink bunny suit and run in traffic with scissors....or just get me a scalpel and I will deliver the liver myself...lol...seriously like I said before this process is not for the meek, you gotta be able to rant, stand for yourself and still find a way to laugh!!
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